Hva skjedde esme? Etter det jeg leser inne hos Rutt, er jeg veldig betenkt på hva som gikk galt med denne tenketanken! Det var ingen fra media der og det ble avlyst? Ergo så var dette med disse 10 ekspertene en fiasko! Hvorfor?
Hva er forklaringen på det? Er det av den enkle grunnen at media ikke bryr seg om ME da det er seriøse forskere som uttaler seg? Eller andre årsaker?
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Tillegg 22-06-2009
STATEMENT FROM ESME – EUROPEAN SOCIETY FOR ME
More Biomedical Research Needed
ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) is a physical disease. It is not a product of the patients’ imagination and is not a psychological problem. Funds have been used for research into the hypothetical psychiatric nature of the disease at the expense of biomedical research. Future research needs to be interdisciplinary and focused on the causes, early diagnosis and treatment of ME/CFS.
The British National Health Service has published NICE guidelines for this disorder which, according to ESME, are not helpful and might even induce relapse in some cases.
ESME will encourage research leading to the accumulation of new knowledge and to a better understanding of the disease, and will endeavour to raise funding for biomedical research in, and education about, ME/CFS.
Stavanger, Norway, June 13, 2009
Launch Meeting ESME
PhD Dr. Liv Bode
Prof. Dr. Med. Kenny De Meirleir
Dr. Med. Derek Enlander
Dr. Med. Ana Garcia Quintana
Prof. Dr. Hanns Ludwig
Prof. Dr. Med. Mária J. Molnár
Prof. Dr. Bodil Norrild
Prof. Dr. Med. Ola Didrik Saugstad
Prof. Dr. Med. Babill Stray-Pedersen
Prof. Dr. Med. Umberto Tirelli
ESME website: www.esme-eu.com
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